My first post, Out of the Tower, was featured on The Mighty, a website dedicated to sharing stories of disability, disease, and mental illness. That piece was swirling around inside me for a long time before it came together. I think it was piecing itself together as I tried to not cry at stop signs this past year. It means a lot to have this opportunity to share how I feel, especially because it’s not easy to admit that getting better isn’t the answer to all of your problems.
It’s great to know that it actually wasn’t bullshit when I wrote that everyone has their towers. People I haven’t heard from in years got in touch to tell me they might not get my circumstances, but they definitely understand the feelings. New friends shared their own stories of breaking free from towers of isolation. I am so grateful for their responses. Grateful in ways I don’t know how to explain. Humbling ways. Ways that make me want cry a little bit, even though generally I really dislike crying; it somehow feels like it might be good to grateful cry? I don’t know. I’ll probably hate it. I’ll give it a try and let you know.
The point is, though, that I made the right call getting super personal on the internet. Who knew? That’s not going to be true in all cases at all times, but it is true that you should share your story. Maybe with someone face to face. Maybe with the internet. I don’t know what will work for you. I didn’t know this would work for me, but I risked it and it did. Risk it.
Check out the other stories on The Mighty–they have a whole category just for CFS/ME, but there is great stuff in all of the categories. And if you want to, check out my piece again. I’ll be grateful that you did!